7. 2. Discount, Discount Code 9. The details were harrowing. Rebecca explains what they've been through, and Gary tries to calm Deborah. His research involved taking tissue samples from Henrietta and other cervical cancer patients at Johns Hopkins. Deborah was happy when she passed: her grandchildren were doing well in school, and she knew that Rebecca would tell Henrietta's story. Does the title of this chapter evoke an emotional response from you? Determine the central ideas or conclusions of a text; trace the texts explanation or depiction of a complex process, phenomenon, or concept; provide an accurate summary of the text. She wonders aloud if her mother breastfed herand then feels sure that she Chapter One: The Exam 1. for a customized plan. She takes the photo of Elsie with her and thanks Paul Lurz. What does Deborah say about people who frame her mothers story as a story about racism? 4. Deborah submitted a written request for a photocopy of Elsies autopsy report. What did Mary, Geys assistant, realize when she saw Henriettas painted toenails? Many of these topics could be easily applied to group projects. Is their belief based on real events? Ted Slavin a hemophiliac whose doctor told him his cells were valuable. Deborah says that she's amazed that all those cells are her mother. In what specific ways did the media influence the publics perception of cell hybrids? What reason does Deborah give for not wanting Skloot to type out Henriettas records word-for-word? If Gey did speak to Henrietta just before she died, do you think she would have understood what immortal cells were? How did Bobette find out about HeLa? At the end of this chapter, with Skloots phone call, the three narrative threads in the book come together as one, and from this point on, the story moves forward chronologically, no longer moving back and forth between different time periods. 5. Stanley Gartler the geneticist who dropped the HeLa bomb when he proposed that many of the most commonly used cell cultures had been contaminated by HeLa cells. 2. 7. Who do you think makes the more persuasive argument, Van Valen or Stevenson? Tap into Getty Images' global scale, data-driven insights, and network of more than 340,000 creators to create content exclusively for your brand. 8. What does it suggest about his life and personality? 8. The injustice of Henrietta Lackss story has opened the medical community to a new standard of care, bringing to light several bioethical issues, including informed consent, medical records privacy, and communication with tissue donors and research participants, according to Johns Hopkins. Elsie, committed to Crownsville Hospital Center at a young age, was likely abused and neglected prior to her death at the institution in 1955. Explain Deborahs fears regarding her sister, Elsie. Henrietta tells the rest of her family about her illness. In spite of her deliberate decision to not read her mothers medical records, Deborah Lacks still learned extremely upsetting details about her mothers illness and autopsy. As the story of HeLa unfolds, so does the story of Henriettas surviving children, who for two decades were unaware of the existence of their mothers cellsand the multimillion-dollar industry that developed around the production and use of HeLa. She was institutionalized. The institution where Elsie lived most of her life, the Hospital for the Negro Insane, was now the Crownsville Hospital Center, a state-of-the-art medical facility. Members of the Medical and Scientific CommunityAlexis CarrelFrench surgeon and Nobel Prize recipient who claimed to have cultured immortal chicken-heart cellsChester Southam cancer researcher who conducted unethical experiments to see whether or not HeLa could infectpeople with cancerChristoph Lengauer cancer researcher at Johns Hopkins who helped develop FISH, a technique used to detect andidentify DNA sequences, and who reached out to members of the Lacks familyEmanuel Mandel director of medicine at the Jewish Chronic Disease Hospital (JCDH) who partneredwith Southam in unethical experimentsDr. Focus your discussion on the economic, environmental, and longterm public health implications for local communities resulting from the presence of these industries. Cite specific court cases and/or current events. Explain why Golds journalism could be considered irresponsible and/or unethical. Why were the hospitals medical records from the 1950s and earlier disposed of? From a scientific perspective, it seems peculiar to think of the cells as human, since they cannot see or think or feel. Elsie Lacks (born Lucille Elsie Pleasant) Henriettas second born and eldest daughter. With so many aspects of The Immortal Life of Henrietta Lacks to discuss, the fate of Deborahs younger sister, Elsie, sometimes goes unmentioned. Explain how the development of the Pap smear improved the survival rate of women diagnosed with cervical cancer. They're like having in-class notes for every discussion!, This is absolutely THE best teacher resource I have ever purchased. Does Deborah agree with him? WebSir Lord Keenan Kester Cofield. Dont have an account? As children, they worked the tobacco fields together.Crazy Joe GrinnanHenriettas cousin who competed unsuccessfully with Day for her affectionDavon MeadeDeborahs grandson who often lived with and took care of herEthelGalens wife, an abusive caregiver to Henriettas three youngest childrenFred GarretHenriettas cousin who convinced Day and Henrietta to move to Turner StationGalen Henriettas cousin. 5. 7. Zakariyya uses the term disrespect to describe Geys treatment of Henrietta and the family. 7. Skloot tells her that the blood McKusick took from her family wasn't for a cancer test. Not affiliated with Harvard College. Why did scientists find the Moore lawsuit deeply troubling? 2. There is nothing left except the post office. resource to ask questions, find answers, and discuss thenovel. Renew your subscription to regain access to all of our exclusive, ad-free study tools. Click here for a photograph exibit featuring Crownsville Hospital Center. 7. 5. Explain the meaning of the idiom the other side of the tracks. 2. David Jr. Sonny Lacks Henrietta and Days third child, Deborah Dale Lacks Henrietta and Days fourth child. What questions did Deborah have about her mother and sister? Chapter Thirty-Six: Heavenly Bodies 1. How is it being challenged by emergent technologies? Born on August 1, 1920 in Roanoke, Virginia, Lacks lived 31 years filled with joy, laughter, and dancing around the kitchen table with her children. Rebecca and Deborah finally meet an employee named Paul Lurz, who explains that most of the medical records were destroyed when the area in which they were stored was contaminated with asbestos. She was institutionalizeddue to epilepsy and died at age fifteen.Gladys LacksHenriettas sister, who disapproved of Henriettas marriage to DayJohnny PleasantHenriettas father. What do these similes suggest about biology? In the Afterword, Skloot summarizes the main issues and legislation surrounding the collection and use of human tissue samples. Eliza Lacks Contrast the rhetorical structure and narrative strategies used in the television episode with those in Skloots book. The Immortal Life of Henrietta Lacks tells a riveting story of the collision between ethics, race, and medicine; of scientific discovery and faith healing; and of a daughter consumed with questions about the mother she never knew. After getting out of jail, Zakariyya Rahman participates in a number of research studies in exchange for monetary compensation. Henrietta was diagnosed with cervical cancer shortly after his birth. She points out that the HeLa cells did a lot of good for science, but she just wishes she knew more about who her mother was. Lengauer points out that scientists need to be careful when handling the HeLa cells to avoid releasing them, and Deborah asks if this is related to the contamination problem, which impresses Lengauer. 6. Because his lab is located at Hopkins, they walk past the same statue of Jesus that their mother walked past on her way to treatment for cancer. As Rebecca is going through Elsie's medical records, she identifies a term that Deborah asks Rebecca not to put in the book. Check out our revolutionary side-by-side summary and analysis. Why did scientists find it necessary to conduct research on human beings? Why wasnt Skloot excited about meeting Zakariyya? Rebecca at last loses her cool, however, and this, surprisingly, makes Deborah relent. Explain how Henriettas real name became public knowledge. 5. Days health had deteriorated too much to make the trip, Sonny had to work, and Lawrence still wanted to sue Hopkins. Your subscription will continue automatically once the free trial period is over. for a group? The Immortal Life of Henrietta Lacks Why do you think Joe turned himself in to the police? WebElsie Lacks (born Lucille Elsie Pleasant)Henriettas second born and eldest daughter. Before You Read Point out the differences between the genres of historical fiction and nonfiction. 10. 7. 3. Moores doctor and the University of California appeal.1991 The Supreme Court of California rules against John Moore, saying that once tissues are removed from the body, with or without consent, a person no longer owns those tissues.1996 The Health Insurance Portability and Accountability Act makes it illegal for healthcare providers or health insurers to make personal medical information public.1999 The RAND Corporation publishes a report with a conservative estimate that more than 307 million tissue samples from more than 178 million people are stored in the United States alone. Chapter Seven: The Death and Life of Cell . Explain your answer. 4. Summarize the various factual errors that appeared in the stories about HeLa. Deborah ends up leaving her husband and moving into her own apartment in an assisted living facility. Literature and Culture of the Modern Language Association, the What does this term suggest about the values of the Lacks family? What was the lawyers main argument in Joes defense? Why do you think Pattillo agreed to help Skloot contact Henriettas family? How does Skloot use transitions to develop continuity between sections that do not appear in chronological order? Do you agree that Henrietta should have been correctly identified in order to give her the fame she so richly deserves, or do you think her anonymity should have been protected? In the morning, Rebecca is exhausted and Deborah has broken out in massive hives and welts. Explain what an immortal cell line is. Describe Deborahs childhood. Webright to view Elsie Lacks medical records. The He organizes a yearly HeLa conference at Morehouse in Henriettas honor.Stanley Gartlerthe geneticist who dropped the HeLa bomb when he proposed that many of the most commonly used cell cultures had been contaminated by HeLaSusan Hsuthe postdoctoral student in Victor McKusicks lab who was assigned to make contact with the Lackses and request samples from them for genetic testing without informed consentVictor McKusickgeneticist at Johns Hopkins who conducted research on samples taken from Henriettas children without informed consent to learn more about HeLa cellsWalter Nelson-Reesthe geneticist who tracked and published the names of cell lines contaminated with HeLa without first warning the researchers he exposed. Thirty-seven years after Henriettas death, sixteen-year-old Rebecca Skloot was a high school student sitting in a biology class when her instructor mentioned that HeLa, the first immortal human cell line ever grown in culture, had been taken from an African American woman named Henrietta Lacks. Locations. 2. By signing up you agree to our terms and privacy policy. More books than SparkNotes. Until this point, all of Geys attempts to grow a human cell line had ended in failure, but Henriettas cells were different: they never died. The Lacks family often treats the HeLa cells as though they were Henrietta; they speak to them as though they can hear (such as in Chapter 32 when Deborah warms a vial of her mother's cells in her hands, saying that she's cold), they refer to them as having agency and thought, and so on. Were they informed about the research and its risks? PDF downloads of all 1725 LitCharts literature guides, and of every new one we publish. 11. Why was he surprised that he had Elsies records in particular? 3. After her diagnosis and treatment, how did Henrietta behave? 8. Despite Deborahs clear shock, she insisted she still wanted to go to the Maryland State Records Archive to see if Elsies medical records had survived. 4. 2. What obstacle kept Deborah from realizing her dream of returning to school? How did Skloot finance the research for her book? What were some of Deborahs fears and concerns after she found out that her mothers cells were still alive? He became known as a vigilante. Explain the contribution that HeLa made to the emerging field of genetics. 4. When did the doctors realize that Henrietta had been correct about the growth of her cancer? 4. They wander around the building looking for the medical records office, before Deborah finally takes matters into her own hands and starts yelling to get someone's attention. 3. Compare the differences between irresponsible and responsible reporting on HeLa and the Lacks family. 5. He published details from Henriettas medical records and autopsy report without permission from the Lacks family.Michael RogersRolling Stone reporter who wrote an article about the Lacks family in 1976. Explain the connection that Sonny makes between his mothers personality and the ways he believes HeLa cells have been used. Elsie Lacks, Henriettas youngest child, had been committed to Crownsville Hospital Center for alleged cerebral palsy, epilepsy, and a diagnosis of idiocy (273). Please wait while we process your payment. What simile does she use to explain the functions of the different parts of a cell? How is it resolved? Elsie lacks 7. According to Ethels cousins, why did she dislike Henrietta? American Review changed its name for a third time and expanded its Analyze the structure of texts, including how specific sentences, paragraphs, and larger portions of the text (e.g., a section, chapter, scene, or stanza) relate to each other and the whole. She was a black woman, who had cervical cancer growing in her cervix. He developed the techniques used to grow HeLa cells from Henriettas cancer tissue in his lab.Howard JonesHenriettas gynecologist at Johns HopkinsLeonard HayflickMicrobiologist who proved that normal cells die when theyve doubled about fifty times. Lurz had informed them the Maryland State Archives in Annapolis had any surviving records that werent on the Crownsville, MD hospital grounds, and Deborah was keen to go there immediately (despite Skloots gentle probing of her emotional state). Craft and Structure Determine the meaning of symbols, key terms, and other domain-specific words and phrases as they are used in a specific scientific or technical context relevant to grades 1112 texts and topics. Patients with all sorts of diagnosesfrom dementia and TB to low self-esteemwere grouped together in airless rooms, and many patients had to share beds, sleeping head to toe on twin mattresses. Deborah says that she wants God to take the burden of the cells from her life, and Gary tells her that this is why Rebecca has come into her life - she will take on the burden of the cells instead. Renews May 8, 2023 What does the fact that the town still has more than ten churches suggest about the people in Turner Station? 2. What did Deborah hope would happen as a result of Skloots research about Henrietta? Deborah begins to grow increasingly erratic, insisting on keeping the photo of Elsie in the front seat of her car and showing it to everyone she meets. A lay preacher, he performed a faith healing on Deborah.LaTonyaDeborah and Cheetahs second child; Davons motherLittle AlfredDeborahs grandsonMargaret Sturdivant Henriettas cousin and confidante. 5. SCIENCE 1. Chapter Thirty-Eight: The Long Road to Clover 1. The two women drive to Crownsville, which was formerly known as the Hospital for the Negro Insane. 6. 6. Using the history of Turner Station as a model, discuss the role that the oil, automotive, steel, and coal industries have played, and continue to play, in shaping the landscape of the United States. HFS provides print and digital distribution for a distinguished list of university presses and nonprofit institutions. 8. Deborah shifts between joy at finding out new information about her mother and panic at each new fact. Allowing Skloot access gives some amount of liberation as well as the feeling that her mother's life had not Informed consent means that patients must be informed of a doctors or labs intentions relative to the use of their tissue, blood, or cells. Bobette Lacks Lawrences wife. 8. Deborah and Zakariyya accompanied Skloot to visit Lengauer at Hopkins in order to see the HeLa cells. WebHenrietta Lacks by foregrounding Elsie, whose absent presence appears in only twelve to fifteen pages of the entire book, even though her story offers a powerful indictment of the What details suggest that Carrels claims about the immortal cell line were not scientifically sound? 4. 3. This is known as the Hayflick limit.Margaret GeyGeorge Geys wife and research assistant. How are different types of cancer categorized? The Best Books to Get Your Finances in Order, Books Based on Your Favorite Taylor Swift Era, Cook a Soul Food Holiday Meal With Rosie Mayes. The Immortal Life of Henrietta Lacks What did some family members think was the real reason Ethel moved in? Explain your answers. She died when Henrietta was four. 6. What is their position on suing over the use of HeLa? Chapter Eight: A Miserable Specimen 1. How has this right evolved over the course of American history? Members of the Medical and Scientific Community. She was a trained surgical nurse. Summarize the events in Deborahs life leading up to her initial contact with Rebecca Skloot. Extended Lacks FamilyAlbert LacksHenriettas white great-grandfather. Where did Southam find test subjects for his second research study? title Negro American Literature Forum and for the next fifteen years 3. To redeem, copy and paste the code during the checkout process. You'll be able to access your notes and highlights, make requests, and get updates on new titles. What subjective conclusions can you make about Mama Speed based on the objective details on page 72? Writing Prompts are thematic and organized in sections that may be of special interest to the disciplines of language arts, social studies, and science. Margaret Gey George Geys wife and research assistant. In telling Henriettas story, Skloot draws from primary sources and personal interviews to provide insightful narrative accounts of Henriettas childhood, young adulthood, diagnosis, illness, and tragic death. Nuremberg) have been made to govern the way this research is conducted, and how successful have these attempts been? She recovers well and is determined to learn more about her mother, but she doesn't have the money to continue with school. Chapter 38. $18.74/subscription + tax, Save 25% 8. She died when Henrietta was four.Gladys LacksHenriettas sister, who disapproved of Henriettas marriage to DayJohnny PleasantHenriettas father. Why did scientists want to fuse human and animal cells? Contrast the working conditions of black workers and white workers at the Sparrows Point Steel Mill. Explain what happens during somatic cell fusion. As Skloot tenaciously worked to gain Deborahs trust, Deborah struggled to understand what had happened to her mother and her mothers cells. Regardless of the truth of these hauntings, the stories of patient abuse and neglect, including that of Elsie Lacks, are even more horrifying to consider. The Absent Presence of Elsie Lacks: Hauntings Did the family give informed consent for the research done on those samples? Were black patients generally treated differently from white patients in the early 1950s? TCU Library's core values and strategies. | In 1992, African 5. Next, Deborah and Rebecca undertake a mission to figure out what happened to Deborah's sister Elsie. 7. Lacks went to Johns Hopkins medical center for treatment for her cancer. Douglas Bez, DO | McLaren Physician Directory Do you feel that it is an appropriate response? What does it tell you about Joes personality and background? How did her reaction evolve after she had a chance to dwell on the picture and process the disturbing information that she had been given? Contact us The division also manages membership services for more than 50 scholarly and professional associations and societies. After learning about Crownsville, MD and what had happened to Elsie Lacks, Deborah was surprisingly upbeat. Shortform has the world's best summaries of books you should be reading. X-rays show a massive inoperable tumor in her pelvis. Why was the development of methods of freezing cells an important scientific breakthrough? The Immortal Life of Henrietta Lacks Teachers Guide, certain categories of personal information, discloses, sells, or shares certain personal information. Why do you think Skloot structured the book this way? Rebecca finds one record from shortly before Henrietta gave birth to Deborah; the doctor says her cervix looked healthy then. About the Author REBECCA SKLOOT is an award-winning science writer whose articles have appeared in The New York Times Magazine; O, The Oprah Magazine; Discover; Prevention; Glamour; and others. 5. In spite of her deliberate decision to not read her mothers medical records, Deborah Lacks still learned extremely upsetting details about her mothers illness and autopsy. Chapter Fifteen: Too Young to Remember 1. "Which of these sentences" means that you have been provided with answer choices for your question. As children, they worked the tobacco fields together.Crazy Joe GrinnanHenriettas cousin who competed unsuccessfully with Day for her affectionDavon MeadeDeborahs grandson who often lived with and took care of herEthelGalens wife, an abusive caregiver to Henriettas three youngest childrenFred GarretHenriettas cousin who convinced Day and Henrietta to move to Turner StationGalenHenriettas cousin. 7. Determine the central ideas or conclusions of a text; summarize complex concepts, processes, or information presented in a text by paraphrasing them in simpler but still accurate terms. The photograph, in contrast to Elsies childhood photos, was horrific, and showed that Elsie clearly suffered neglect. Henrietta's death was an enormous tragedy for Elsie Lacks, because Henrietta was the only one who visited her and tried to take care of her. She and Henrietta sometimes sneaked out to go dancing. The narrative structure of the book is quite complex, as the author weaves together numerous narratives.
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